A Fatigue Scale by Miss•Treated
Posted by jpluimers on 2024/03/04
Some two years ago, a friend of me having Long-COVID posted about fatigue and the trouble finding a scale for it.
Their Dutch Twitter thread contained the below list which is very useful as it is phrased using concrete terms.
[Wayback/Archive] Five Reasons Fatigue Isn’t Like Normal Tiredness (Proving Most People Don’t Get It) — Miss•Treated
It lead me to a site having this list and comparable lists on pain (both physical and mental) with the added bonus that it also included text versions of them at [Wayback/Archive] andrewducker | Pain, Mental Pain, and Fatigue scoring
Pain Scale transcription
- I am in bed and I can’t move due to my pain. I need someone to take me to the emergency room because of my pain.
- My pain is all that I can think about. I can barely move or talk because of my pain.
- My pain is so severe that it is difficult to think of anything else. Talking and listening are difficult.
- I am in pain all the time. It keeps me from doing most activities.
- I think about my pain all of the time. I give up many activities because of my pain.
- I think about my pain most of the time. I cannot do some of the activities I need to do each day because of the pain.
- I am constantly aware of my pain but can continue most activities.
- My pain bothers me but I can ignore it most of the time.
- I have a low level of pain. I am aware of my pain only when I pay attention to it.
- My pain is hardly noticeable.
- I have no pain.
Fatigue Scale transcription
- can barely move; can’t talk
- can barely move; can talk
- can move, but can’t do much more than watch TV
- can watch TV and play a game on my phone simultaneously
- can do work on my computer lying in bed
- can get around the house, but definitely couldn’t go out
- can run a light errand
- can get in my 10,000 steps, making my fitbit happy
- can do three or more activities in a single da
- going clubbing!
Mental Health Pain Scale transcription
- The worst mental and emotional distress possible. You can no longer care for yourself. You can’t imagine things getting any worse. Contact a crisis line immediately.
- You’re at a critical point. You aren’t functioning any more. You need urgent help. You may be a risk to yourself or others if left untreated.
- You can’t hide your struggles any more. You may have issues sleeping, eating, having fun, socialising, and work/study. Your mental health is affecting almost all parts of your life.
- You’re avoiding things that make you more distressed, but that will make it worse. You should definitely seek help. This is serious.
- You can’t do things the way you usually do them due to your mental health. Impulsive and compulsive thoughts may be hard to cope with.
- Your mental health is starting to impact on your everyday life. Easy things are becoming difficult. You should talk to your doctor.
- Today is a bad day (or a few bad days). You still have the skills to get through it, but be gentle with yourself. Use self-care strategies.
- Things are bothering you, but you’re coping. You might be overtired or hungry. The emotional equivalent of a headache.
- You’re a bit frustrated or disappointed, but you’re easily distracted and cheered up with a little effort.
- Everything is a-okay! There is absolutely nothing wrong. You’re probably cuddling a fluffy kitten right now. Enjoy!
Via the thread (in full at [Wayback/Archive] Thread by @NadineBoke on Thread Reader App) starting with:
- [Wayback/Archive] Nadine Böke on Twitter: “Die had ik nog niet verwacht; het kabinet wil het thuiswerk-advies schrappen. Daar zie ik eerlijk gezegd nogal tegenop. De reden dat ik ondanks mijn long covid klachten toch 4 u/dag kan werken, is juist omdat het vanaf huis kan & ik de uren kan spreiden.”
mentioning the fatigue scale:
- [Wayback/Archive] Nadine Böke on Twitter: “Ik zocht net of er officiële schalen zijn om aan te geven waar je zit qua vermoeidheid / uitputting. Dit is geen officiële maar hij is wel heel fijn herkenbaar. Vandaag zit ik na 3 uur vanuit huis te hebben gewerkt tussen de 7 en 8. Ik moet nog 1 uur werken, en ben inmiddels…”
Twitter accounts
- [Wayback/Archive] Nadine Böke (@NadineBoke) / Twitter
- [Wayback/Archive] Katie Ernst (@MissKatieErnst) | Twitter which got renamed into [Wayback/Archive] Katie Ernst (@KatieErnstEsq) / Twitter
- [Wayback/Archive] Andrew Ducker (@andrewducker) / Twitter
–jeroen
The Wiert Corner - irregular stream of stuff 
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