The Wiert Corner – irregular stream of stuff

Jeroen W. Pluimers on .NET, C#, Delphi, databases, and personal interests

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Current state: still fighting the metastases of the rectum cancer; chemos are done, major liver surgery in about 3 weeks

Posted by jpluimers on 2020/08/23

A long follow-up of Current state: still fighting with rectum cancer, but chances for better quality of life which does not even include everything, because so much happened.

So this is the current state; browse back via Twitter for more of the history which you can find at [Archive.is] Jeroen Pluimers on Twitter: “Too much to let sink in …” and [Archive.is] Jeroen Pluimers (@jpluimers) | Twitter.

Too much to let sink in, not just about the hospital results and upcoming surgery, but also about Cindy and Danny Thorpe who just lost their house in the California forest fires, despite it being on the humid side of the Santa Cruz mountains.
If you can help anybody affected by the #CZULightningComplex, please do. Many families there are going through a rough time for the foreseeable future especially because of the combination of fires and COVID.
If you are in that area: be careful, be safe.
For me it is mixed emotions time.
The chemo did make the cancer operable. Some tumors have shrunken, a few small ones are invisible, probably because of the chemo-induced hepatic steatosis, and no new tumor were found.
The prolapse has grown big: extended it is at least 10cm of bowel pushing itself outside of the abdomen causing many stoma leaks (5 full ones in 2 weeks time and 2 almost ones yesterday).
The good news is that it means there is hardly any intestinal adhesion.
The bad news: it takes 4-8 hours a day (of which 1-2 hours during the night) pushing the bowel back into the stoma so the output opening becomes unblocked and the poo can get out.
Though a temporary situation, this eats a lot of energy.
It means I need to find a way to keep my body in shape to prepare for surgery which is in 3-4 weeks (likely mid September).
The surgery will be tough as it will focus on 2 things:
  1. Removing areas of of the liver where the tumors are and were (which is about 30-50% of the liver).
  2. Likely remove the gallbladder, to minimise the chance of bile leakage (which is devastating when it gets into the abdomen)

    (Good news: no chance to get gallstones)

  3. repair the small intestine and remove the stoma.
It is going to be bloody surgery (because of the liver part) taking some 4 hours or more, likely ending up in the IC because the post-surgery risks.
This scares the hell out of me.
In addition recovery will take a long time, and even longer for liver tissue growing back (it will never reach 100%, but should be much more than 50% in a few years time).
I also need to re-learn how to poop, which likely means back to diaper age for quite a while.
So all of this means I feel very confused. Glad on the one side because I will loose the cancer and the stoma, but mixed about the risks and recovery.
More later.

–jeroen

Via [Wayback] Thread by @jpluimers on Thread Reader App: Too much to let sink in, not just about the hospital results and upcoming surgery, but also about Cindy and @danny_thorpe who just lost their house in the California forest fires…

Posted in About, Personal | 1 Comment »

The biggest lie I tell myself is not about new years resolutions.

Posted by jpluimers on 2019/01/01

The biggest lie I tell myself is “I don’t need to write that down, I’ll remember it”

It’s likely older, but the oldest reference I could find was 2012 [WayBack].

So before I forget:

Happy New Year everyone!

With the above quote, it is no coincidence I started my blog even earlier (in 2009): it’s my off-line memory, way better readable than my hand-writing and indexed by various search engines.

Read the rest of this entry »

Posted in About, LifeHacker, Personal, Power User | Leave a Comment »

Twitter: view tweets by people you enabled the “notification bell” for

Posted by jpluimers on 2021/11/26

This URL will usually bring you the list of “important” tweets (by people you have flagged to get notifications about):

https://twitter.com/i/timeline

Via: [Archive.isJeroen Pluimers on Twitter: “Ik kijk steeds vaker via twitter.com/i/timeline “

–jeroen

Read the rest of this entry »

Posted in Uncategorized | Leave a Comment »

Score-checklist klachten/eigenschappen/symptomen voor kwaliteit van leven

Posted by jpluimers on 2021/11/26

[WayBack] stomaatjelidy on Twitter: “@caseofdees @jpluimers Wmo dordrecht heeft zoiets” / Twitter

–jeroen

Posted in About, LifeHacker, Personal, Power User | Leave a Comment »

75 Funny Wifi Names (besides Disconnected and Access Denied)

Posted by jpluimers on 2021/11/26

[WayBack] 75 Funny Wifi Names (as I already run “Disconnected” and “Access Denied”).

Related blog posts:

–jeroen

Posted in Fun, Network-and-equipment, Power User, WiFi | Leave a Comment »

Some links on data bias

Posted by jpluimers on 2021/11/25

[Archive.is] NL_Wetenschap on Twitter: “Er zijn inderdaad veel manier waarop data gebiased kan zijn, zeker in dit soort contexten. Heel veel van dit soort oplossingen staan of vallen met hoe goed mensen zich er van bewust zijn dat data nooit een ‘gegeven’ is maar gemaakt wordt.” / Twitter

[Wayback/ThreadreaderApp]

Er zijn inderdaad veel manier waarop data gebiased kan zijn, zeker in dit soort contexten. Heel veel van dit soort oplossingen staan of vallen met hoe goed mensen zich er van bewust zijn dat data nooit een ‘gegeven’ is maar gemaakt wordt.https://twitter.com/jpluimers/status/1348550923958804480

Data is nooit een doorgeefluik van de werkelijkheid, we máken data. We kiezen ervoor om iets te tellen bijvoorbeeld, en maken keuzes in wat wel en niet meegenomen wordt. Tot op zekere hoogte is dat arbitrair (goede nieuws: daar kunnen we wel verantwoording over afleggen!). 
Met dat in het achterhoofd is een eerste stap om je sterk afvragen wat zegt deze data wel en vooral ook niet. En vervolgens: wat kunnen/mogen/willen we hier dan wel of niet mee? Wat betekenen deze keuzes voor gebruikers of burgers? 
Welke normen en waarden zitten er ‘verstopt’ in of achter de data? Op wie heeft de inzet van die data effect en in welke mate? 

Background reading:

–jeroen

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Posted in Development, Software Development, Systems Architecture | Leave a Comment »

What is “deleted” in an information system?

Posted by jpluimers on 2021/11/25

I have had quite a few discussions about data being “deleted” in information systems.

Often, data – despite GDPR – isn’t, or can’t be deleted for many reasons, especially when data is retained on backups, cloud storage is involved or data has been copied in other ways.

Many times, marking with a flag that data is deleted, is enough, but often it isn’t and then you need processes to track down all occurrences of the data and delete it permanently, which can be a tedious job.

Some more interesting thoughts are in this thread that triggered me:

Posted in Development, Software Development, Systems Architecture | Leave a Comment »

 
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