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Jeroen W. Pluimers on .NET, C#, Delphi, databases, and personal interests

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Archive for the ‘Autistic Spectrum/Autism’ Category

Trying to do my best to be “and” instead if “either, or” (plus some links to convert Instagram media id to/from shortcode)

Posted by jpluimers on 2023/11/15

[Wayback/Archive] Danielle Braun dr. on Twitter: “En en in plaats van of of.”

The image is by @thepresentpsychologist on Instagram (figured that out via Google Lens finding [Wayback/Archive] Psychological Safety Newsletter #39: Diversity and Ethical Behaviour | Psychological Safety), but and it took some effort to find the original post back as Instagram does not allow anonymous browsing.

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Posted in About, Autistic Spectrum/Autism, Development, Instagram, JavaScript/ECMAScript, Node.js, Personal, Scripting, SocialMedia, Software Development, Web Development | Leave a Comment »

Jesse J. Anderson on Twitter: “People with ADHD are often surrounded by piles of clutter…: things I don’t want to forget.”

Posted by jpluimers on 2023/07/27

Thread to remember that started with [Archive] Jesse J. Anderson • ADHD Creative on Twitter: “People with ADHD are often surrounded by piles of clutter. My desk is in a permanent state of chaos. Piles of books, papers, index cards, and random other things I don’t want to forget.” / Twitter

I bumped into it via [Archive] Ilse on Twitter: “Ja! Als ik het niet zie, denk ik er niet aan.” / Twitter (thanks!).

I saved the thread at [Wayback/Archive] Thread by @jessejanderson on Thread Reader App – Thread Reader App and I am quoting it in full as it is so much me, highlighting it the most important bits for me:

People with ADHD are often surrounded by piles of clutter.

My desk is in a permanent state of chaos.

Piles of books, papers, index cards, and random other things I don’t want to forget.
Other ADHDers might keep a clean desk, but use their car as an extra closet and storage facility.

Why is this so common for people with ADHD?

It’s actually a form of self-preservation.
We often forget things we can’t see.

Instinctively, we know this.

When things are truly put away—hidden in the depths of a box or drawer—we know they disappear from our brains entirely.
This is why planners rarely work for people with ADHD.

The second we close the cover, we forget everything inside.

Without a routine in place, we might never remember to open it again.
When I was younger, sometimes my mom would be so fed up with my room she would clean it herself.

I _hated_ when she did this!

“How will I ever find anything?!”
When things are “a mess”, they are out in the open and I can use them as a physical memory palace—the visual of their environmental placement reminds me where things are.

It may look like a mess, but I can find exactly what I’m looking for.
This extends beyond just knick-knacks on a desk.

Sometimes a work responsibility will fall out of your brain.

You were doing it consistently and one day—for some unknown reason—you forgot to do it.

It’s no longer part of your environment, your routine.
When this happens, you know you’ll _never_ remember this thing again until something specifically reminds you.

As if it’s fallen into one of those boxes or drawers you never remember to open.
This can happen with people too.

If you haven’t seen someone recently, you might forget they exist entirely.

This can add a lot of stress to personal and family relationships.

People are offended and fail to understand.
If you enjoyed this thread or found it helpful:

🔁 Share by retweeting the first tweet

📮 Grab my free weekly ADHD newsletter (extrafocus.io)

–jeroen

Posted in About, Autistic Spectrum/Autism, Awareness, LifeHacker, Personal, Power User | Leave a Comment »

Chris Bensen on Twitter: “I just had a notion about they cycle I go through with every project I have ever worked on so I drew this up before I forgot it. I hope everyone can read it.… “

Posted by jpluimers on 2022/12/07

The below graph complemented the EKON25 “Impostor Syndrome” session by Jens Fudge very well:

[Wayback/Archive] Imposters Syndrome and mental management – Entwickler Konferenz

[Archive] Jens Fudge on Twitter: “Indeed it is Its not the same but can be compared to some mental aspects of sports I wrote a book on that subject … “:

[Wayback/Archive] English | Choose to be a winner

[Archive] Chris Bensen on Twitter: “I just had a notion about they cycle I go through with every project I have ever worked on so I drew this up before I forgot it. I hope everyone can read it.… “

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Posted in About, Autistic Spectrum/Autism, Development, Hardware Development, LifeHacker, Personal, Power User, Software Development | Leave a Comment »

Autists usually are right (:

Posted by jpluimers on 2022/11/04

Dutch article “Autisten hebben meestal gelijk“.

Via:

jeroen

Posted in About, Autistic Spectrum/Autism, Personal | Leave a Comment »

Vivianne Miedema on Twitter: “Sometimes you can’t see what’s going on inside someone… be nice ♥️…” #WorldMentalHealthDay

Posted by jpluimers on 2022/10/10

Last year, [Archive.is] Vivianne Miedema on Twitter: “Sometimes you can’t see what’s going on inside someone… be nice ♥️… “ forwarded a modified copy of the below picture in which anyone usually recognises at least one artefact.

It isn’t the original, but that’s OK, as the main message is this:

Be nice to anyone. Not just today on World Mental Health Day: Every day!

I did a [Wayback/Archive.is] image search which did not reveal the original, not even in the youngest occurence which was on Facebook (which is odd, as they refuse to be archived, but apparently are open to web-search – go figure!). Of course that one was without attribution because nowadays regrettably few people care about it.

Vivianne at least had some attribution, so via [Wayback/Archive.is] Blessing Manifesting – Making self care and self love part of the everyday., I found both the original picture at [Wayback/Archive.is] 9 Signs of High Functioning Anxiety – Blessing Manifesting and the follow-up at [Wayback/Archive.is] 9 Anxiety Struggles I Have (Part Two) – Blessing Manifesting, both of which I have included below.

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Posted in About, Autistic Spectrum/Autism, Awareness, Personal | Leave a Comment »

Autism Awareness Day 2022 #AutismDay

Posted by jpluimers on 2022/04/02

As today is World Autism Awareness Day – Wikipedia, and women are often not diagnosed despite them being in the autistic spectrum, let’s start with English and Dutch versions of a great book by Bianca Toeps.

Having lived most of her life in The Netherlands, but for years spending half in Japan and half in The Netherlands, she finally emigrated to Japan and gets to The Netherlands every now and then.

English

Autism – that’s being able to count matches really fast and knowing that 7 August 1984 was a Tuesday, right? Well, no. In this book, Bianca Toeps explains in great detail what life is like when you’re autistic.

She does this by looking at what science says about autism (and why some theories can go straight in the bin), but also by telling her own story and interviewing other autistics. Bianca talks in a refreshing and sometimes hilarious way about different situations autistic people encounter in daily life. She has some useful tips for non-autistic people too: what you should do if someone prefers not to look you in the eye, why it is sometimes better to communicate by email, and, most important of all, why it is not a compliment if you say: “But you don’t look autistic at all!”

[Wayback/Archive.is] Home – But you don’t look autistic at all – An #ActuallyAutistic book on autism by Bianca Toeps

Dutch

Bestseller. Bianca beschrijft op eigentijdse en humoristische wijze hoe het is om autistisch (en vrouw en ondernemer) te zijn.

[Wayback/Archive.is] Maar je ziet er helemaal niet autistisch uit – Boek door Bianca Toeps

Me and autism

Me being diagnosed being in the autistic spectrum, which helped big time surviving rectum cancer that was diagnosed a month later [Wayback/Archive.is] Thread by @jpluimers on Thread Reader App – Thread Reader App:

Triggered by @jilles_com (link: next tweet), I was diagnosed with autism 18 months ago coincidentally in the same month my mentally retarded brother got the same diagnosis, followed by training.I got a vocabulary explaining so many good and bad things in our lives!

#AutismDay

First the promised link, as it is a start of a wonderful thread:

@jilles_com
Admit Friday: I have been diagnosed with ADHD, Autism and Binge Eating Disorder over 10 years ago after thorough examination. Therapy helped me discover my own manual. Although coping with being different has its challenges, I consider it to be the superpower I embrace.

The diagnosis tremendously helped me get through all the treatments and care after my rectum cancer diagnosis 17 months ago.

Yes, these diagnoses were only 1 month apart!

#AutismDay

Being able to explain I’m autistic (as one does not look autistic at all: hello @biancatoeps), the consequences it has in approaching me, how to sense when I get overloaded and what happens when I do were key in getting proper care.

#AutismDay

Care that was confused why I took Covid-19 isolation so well, which was because I’m really good at following routines/rituals when I understand they benefit me or the community at large:

@jpluimers

Replying to @jpluimers @aboutanurse and @mirakelams

… dat ik niet boos of teleurgesteld was, maar juist blij dat er zo snel gehandeld was: zoiets, zelfs bij een prikafdeling, is een kwestie van pech, want er hoeft maar 1 superspreader op een ongelukkig moment geweest te zijn. Isolatie was op zich voor mij een soort… 3/

#AutismDay

The diagnosis also unconsciously enabled me to drop almost everything else in life like a brick. Now I know why: I had to in order to be able to survive at all, as without survival, I would be there any more for the people close to me.

#AutismDay

This “drop everything like a brick” baffled my Eega, as this was totally different than my normal modus operandi: I hardly ever drop things.

I now know that this is also one of my biggest weaknesses: being so conditioned not dropping things sometimes bites back big.

#AutismDay

Having a vocabulary around autism also helped me to better understand why things happened the way they did in both my life and various lives of people close to me, including my brother and my Eega.

In addition, I can now better communicate with them and others.

#AutismDay

That still often fails (you might think otherwise reading my streams of tweets, but trust me: communication for me is very hard), but not as badly as it used to.

#AutismDay

It failed big time on Tuesday and I only could explain on Wednesday (it is one of the communication aspects I hate: only being able to see things in perspective very very late, often not being able to set things straight by then).

#AutismDay

Tuesday had 2 important administrative deadlines. Administrative things are among the things I dislike very much, so they give me a basic stress level.

I did have enough spoons (see en.wikipedia.org/wiki/Spoon_the…) to get that done. But then things started failing.

#AutismDay

Two hardware things and a software thing broke down unexpectedly and needed research in order to estimate when and what kind of actions to take.

Those took many spoons, but also put me into “the zone” – see en.wikipedia.org/wiki/Flow_(psy… .

#AutismDay

Being “in the zone” uses less spoons than normal, but hasn’t occurred a lot lately as I’m still recovering from all the treatments, so I did not even consciously realise I was in it at all.

Suddenly, I got kicked out of the zone, causing me to be very angry.

#AutismDay

With the vocabulary and the workshops, I know how to handle that situation better, but not in my current state of recovery.

It has to do with awareness and being able to going slightly outside “the zone” to do minor communication, then go back into it.

#AutismDay

This was a tiny insight into where I am in the autistic spectrum.

It is a spectrum so every autistic person is having aspects in that spectrum, but usually in different places or with different gradations.

Those have cons, but also big pros, especially for work.

#AutismDay

The trick is to find where one can excel using the pros and coping with the cons, for instance by steering towards situations where cons hardly happen and pros happen very often.

#AutismDay

I could tell many more stories and give lots more insights.

Others however are way better at phrasing this, so please read their work. A good start is this great book by @biancatoeps:

toeps.nl/shop/product/s…

It is just EUR 21, so get it while stock lasts (:

#AutismDay

/end

I wrote this inspired by [Wayback] Thread by @jilles_com on Thread Reader App – Thread Reader App starting with:

Admit Friday: I have been diagnosed with ADHD, Autism and Binge Eating Disorder over 10 years ago after thorough examination. Therapy helped me discover my own manual. Although coping with being different has its challenges, I consider it to be the superpower I embrace.

–jeroen

Posted in About, Autistic Spectrum/Autism, Awareness, Personal | Leave a Comment »

I Am Devloper on Twitter: “> why did you become a programmer? me: because I read code better than I can read social clues”

Posted by jpluimers on 2022/03/28

[Archive.is] I Am Devloper on Twitter: “> why did you become a programmer? me: because I read code better than I can read social clues”

–jeroen

Posted in About, Autistic Spectrum/Autism, Conference Topics, Conferences, Event, Personal | Leave a Comment »

The things I didn’t notice during cancer survival: ftfy 6.0 and more versions got released during my recovery (including the poem “Ode to a Shipping Label”)

Posted by jpluimers on 2022/03/10

When writing this, [Wayback/Archive.is] ftfy · PyPI:history indicates ftfy was already at 6.0.3.

It is still my goto tool for figuring out the cause of Mojibake. I remember writing about it the first time in 2016 (see the ftfy category) when it was already at version 3.0, discovering it after a few Mojibake posts.

By now it even understands right-to-left Mojibake garbage: [Archive.is] Elia Robyn Speer on Twitter: “ftfy 5.8 is out! … A user reported that Hebrew text wasn’t being fixed, and this made me think about how to expand some of the trickier cases to non-Latin alphabets.”

Mojibake mishaps still happen a lot, so by now I hope I will have done a Mojibake themed Delphi talk at one or more conferences.

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Posted in !!con (bangbangcon), About, Autistic Spectrum/Autism, Cancer, Conference Topics, Conferences, Development, Encoding, Event, ftfy, Mojibake, Personal, Python, Rectum cancer, Scripting, Software Development, Unicode | Leave a Comment »

Henry Markram speurt naar autisme in een mysterieus orgaan – NRC

Posted by jpluimers on 2022/03/08

Heel herkenbare “Intense World Theory” in het stuk van Niki Korteweg [Archive.is] Henry Markram speurt naar autisme in een mysterieus orgaan – NRC:

En ineens begrepen ze: er is geen sprake van een gebrek, van remmende hersencellen. Het is juist overgevoeligheid, overreagerende neuronen. Mensen met autisme worden overspoeld door de intense beleving.

Autisme is en blijft een ontwikkelingsstoornis. „Maar als we de verschillen kunnen waarderen en begrijpen dat wij ons moeten aanpassen, dan zal dat veel constructiever zijn”, denkt Markram. „Wij zeggen dat mensen met autisme geen empathie hebben. Terwijl wij zelf geen empathie hebben. Voor hen.”

Via:

–jeroen

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To me it does not matter if you call me artist, artistic, or person with artism. Oh, I meant autist, autistic, or person with autism.

Posted by jpluimers on 2022/03/04

Similarly to Bianca Toeps, I always wondered why some are called percussionist, programmer, brother, student, or deaf and there is no discussion to be call them “person who plays percussion instruments”, “person who programs”, “person having a sibling”, “person who studies”, or “person who cannot hear”.

There is a lot of discussion about autism though: very long threads on why someone should be called a certain way.

To me it does not matter, so you can call me all of this:

  • artist
  • artistic
  • person with artism
  • autist
  • autistic
  • person with autism
  • percussionist
  • person who plays percussion instruments
  • programmer
  • brother
  • person who has at least one sibling
  • person who programs
  • student
  • person who studies
  • deaf
  • person who cannot hear (with the left ear)

Yes, “Programming is an art form that fights back”.

Note I heard this quote the first from Kudzu, and since then learned it looks like it is by T.C. Wilson, but I am still not sure which T.C. Wilson.

Some mentions of the quote:

Bianca Toeps on this in Dutch:

–jeroen


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