[Wayback/Archive] Jessica Reintjens on Twitter: “De maandelijkse sirenes zijn straks om 12.00u weer te horen, omdat het de 1e maandag vd maand is, Dat is een mooi moment om u rookmelders vandaag ook weer eens te testen! #rookmelder #rookmeldersreddenlevens #rookmelders #veiligheid #testjerookmelder”.
Archive for the ‘Awareness’ Category
Nationale testdag: Test vandaag ook je rookmelders nu dat de sirenes gegaan zijn (via Jessica Reintjens op Twitter)
Posted by jpluimers on 2022/07/04
Posted in Awareness, LifeHacker, Power User | Leave a Comment »
Inclusie/toegankelijkheid voor het @LUMC_Leiden: een tabel in HTML in plaats van plaatje zonder alt-text – #a11y
Posted by jpluimers on 2022/06/20
Voor inclusie en toegankelijkheid heb ik het plaatje van de tabel met voedingsmiddelen op [Wayback/Archive] Coloscopie | LUMC onderstaand in een HTML versie gegoten dankzij Google Lens die voor mij de tekst via OCR eruit gehaald heeft.
Dit vanwege een ingreep die binnenkort plaatsvindt waarbij een laxeerprotocol met Picoprep bij hoort.
De tabel als plaatje
De tabel is niet leesbaar voor mensen met een visuele beperking, en is afgedrukt bovendien zo klein dat zelfs voor mensen met een normaal zicht dit bijna niet leesbaar is.
Vanuit oogpunt van (verplichte, zie onder) toegankelijkheid en inclusie van mensen met een beperking is dit onwenselijk.
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Posted in accessibility (a11y), Awareness, Development, Health, Hospital, Inclusion / inclusive society, LifeHacker, LUMC, Power User, Web Development | Leave a Comment »
To make Twitter a better place for visually impaired: please do without those fancy Unicode letters in your account and messages – Global Accessibility Awareness Day 2022 – #a11y
Posted by jpluimers on 2022/05/19
Today is Global Accessibility Awareness Day, so it is a good day to write about a Twitter bot that tries to coerce people in having more accessible Twitter names and messages.
I knew I made a bookmark of [Wayback/Archive] Jacques Favreau on Twitter: “@Conundrum9999 @asciiArtHelpBot will make a little video of reading these things if anybody wants to try it out on a tweet.”
But when searching for it earlier this month, I could not find it (see below how in the end I did find it back).
The tweet was part of a thread that started with this tweet which very well describes why you should refrain from using fancy characters in Tweets or Twitter names:
[Wayback/Archive] Katie Mixtochtli – read my pinned – use alt text on Twitter: “Why you should avoid symbols and nonstandard letters in your twitter name if you want to be screen reader friendly: #DisabilityTwitter #disabilityinclusion Read on to see how “𝕁𝕒𝕞𝕖𝕤 – ʷʰᵉʳᵉ ⁱˢ ᵗʰᵉ ᵖʳᵒᵗᵉˢᵗ – ℂ𝕣𝕠𝕩𝕥𝕠𝕟 liked your reply” sounds to me 👇🏼”
The thread contains the long text you get when a screen reader reads that tweet. A video of that is below, and I saved the thread at [Wayback/Archive] Thread by @Conundrum9999 on Thread Reader App:
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Posted in accessibility (a11y), Awareness, Development, Inclusion / inclusive society, SocialMedia, Twitter, TwitterBot | Leave a Comment »
How to survive cancer: an inspiring story by Désirée Hairwassers
Posted by jpluimers on 2022/04/29
Today is my birthday. I am turning 53 today. But when writing this I’m not sure I am what we Dutch call “schoon”. It is a Dutch euphemism that I dislike, but still accidentally use. The thing is that one never knows for sure to be really clean from he signs of cancer metastases.
While writing this post, I’m in a melancholic mood during a period of depression/burnout after all the treatments. I am reflecting on if and how I survived the metastasised rectum cancer and lived through all other stressful things that started somewhere early 2017.
So I was glad to find the tweet below on the edge of spring that inspired me, I originally made me draft this post as being titled
“Surviving cancer is not a fight or a battle, it is about having luck or misfortune”
It was a (now by posting this link) pointer back to Having cancer is not a fight or a battle, it is about having luck or misfortune.
But it doesn’t do the artwork of Désirée Hairwassers justice, so here is her tweet:
[Wayback/Archive] Dees on Twitter: “Het lijkt mij ook een gepast moment om jullie mijn boek te presenteren. In het Engels, want gericht op de hele wereld. Dun boek. Dat moet een bestseller worden….. “
Translated: “I also think it is an appropriate time to present my book to you. In English, because aimed at the whole world. Thin book. That should be a bestseller”
And her video about “How to survive cancer: The inspirational journey of Désirée Hairwassers” showing the book. A very focused book (if it does not show, click on her above tweet to see it):
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Posted in About, Awareness, Cancer, LifeHacker, Personal, Power User, Rectum cancer | Tagged: borstkanker | Leave a Comment »
World Food Supplies: The Ukraine Crisis – a Chain Reaction with Massive Global Impact (by Paul van Ruiten from Bureau OM and Kees Huizinga) #Ukraine #UkraineWar
Posted by jpluimers on 2022/04/15
The 2022 Russian invasion of Ukraine causes a chain reaction on the world food supplies.
Paul van Ruiten of Bureau OM made the below insightful diagram showing that is going on.
It is not complicated as it is an easy to follow chain of cause and effect where in all the parts, Ukraine needs at least three to four of these:
- Safety
- Port Access
- Diesel
- Seeds
- Fertilizer
- Water (from the Dnieper river)
- Pest Control
- Truck Drivers
- Staff
Currently there is already a world-wide increase in food prices and shortages of some foods. This will worsen when in this spring the situation in Ukraine fails to improve (read: Russia gets kicked out).
Large image below the signature from [Wayback/Archive] FPvodTdWQAgmt9k (4096×3100) which you can also download as [Wayback] PDF.
Sources:
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Terugkijken: publiekslezing Kwaliteit van Leven
Posted by jpluimers on 2022/04/11
Een paar weken geleden was de [Wayback/Archive] Terugkijken: publiekslezing Kwaliteit van Leven.
Aan die afdeling heb ik momenteel veel, want ik zit in een flink dal na mijn (voorlopig succesvolle) behandelingen tegen uitgezaaide endeldarmkanker. Ik ben schoon, maar het hoofd is vol (ook met alle andere dingen die er sinds 2017 in ons leven gebeurd zijn) en ook fysiek is het enorm wennen aan een lichaam dat zich heel anders gedraagt dan voor ik kanker kreeg.
[Wayback/Archive] Publiekslezing Kwaliteit van Leven 15 maart 2022 – YouTube
Steeds meer mensen overleven kanker of leven langer met kanker. Tijdens en na de behandeling kunnen patiënten te maken krijgen met verschillende lichamelijke en psychosociale problemen. Daarom staan in ons Centrum voor Kwaliteit van Leven gespecialiseerde professionals klaar om patiënten en hun naasten te helpen bij problemen op lichamelijk, psychisch, sociaal en spiritueel gebied. Om deze patiënten in de toekomst nog beter te kunnen ondersteunen, doet het Antoni van Leeuwenhoek ook wetenschappelijk onderzoek in dit centrum. Tijdens deze online publiekslezing praten wij u bij over wat wij doen in het Antoni van Leeuwenhoek op het gebied van Kwaliteit van Leven.
Via [Wayback/Archive] Antoni v Leeuwenhoek on Twitter: “Wat doen wij in het Antoni van Leeuwenhoek op het gebied van kwaliteit van leven? Diverse specialisten van het AVL en Stichting ‘Ziek Gelukkig’ kwamen tijdens onze publiekslezing aan het woord. Bekijk de lezing terug ➡️… #hetAVL #publiekslezing #ziekgelukkig”
Ook [Wayback/Archive] Stichting Ziek Gelukkig (@ZiekGelukkig) / Twitter kwam aan bod.
–jeroen
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Posted in About, Awareness, Cancer, Health, LifeHacker, Personal, Power User | Leave a Comment »
Mooie Twitter draad van Andrea Walraven Thissen over hoe om mentaal om te gaan met de informatie over de strijd in de Oekraïne
Posted by jpluimers on 2022/04/08
In 1 post want leest sneller dan Twitter: [Wayback/Archive] Thread by @Walrathis on Thread Reader App
Start van de draad op Twitter:
[Wayback/Archive] Andrea on Twitter: “Even een paar tweets, omdat ik merk dat veel mensen last hebben van alle vreselijke oorlogsbeelden. Allereerst; het is heel persoonlijk hoe beelden je raken en wélke beelden je maar moeilijk kwijt kunt raken. Als je moe bent, ziek of op een andere manier niet goed in je vel zit>”
Gerelateerd:
- [Wayback/Archive] Villa VdB on Twitter: “Jurgen van den Berg praat even na 15u met Andrea over onderstaand draadje op @NPORadio1. 🧵” / Twitter
- [Wayback/Archive] NPO Radio 1 on Twitter: “Veel mensen hebben gewild en ongewild de heftige beelden uit Boetsja gezien. Crisishulpverlener Andrea Walraven-Thissen (@Walrathis) deelde hier op Twitter een draadje hoe om te gaan met deze beelden. In @VillaVdb licht ze dit toe. #MAX: …”
–jeroen
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Autism Awareness Day 2022 #AutismDay
Posted by jpluimers on 2022/04/02
As today is World Autism Awareness Day – Wikipedia, and women are often not diagnosed despite them being in the autistic spectrum, let’s start with English and Dutch versions of a great book by Bianca Toeps.
Having lived most of her life in The Netherlands, but for years spending half in Japan and half in The Netherlands, she finally emigrated to Japan and gets to The Netherlands every now and then.
English
Autism – that’s being able to count matches really fast and knowing that 7 August 1984 was a Tuesday, right? Well, no. In this book, Bianca Toeps explains in great detail what life is like when you’re autistic.
She does this by looking at what science says about autism (and why some theories can go straight in the bin), but also by telling her own story and interviewing other autistics. Bianca talks in a refreshing and sometimes hilarious way about different situations autistic people encounter in daily life. She has some useful tips for non-autistic people too: what you should do if someone prefers not to look you in the eye, why it is sometimes better to communicate by email, and, most important of all, why it is not a compliment if you say: “But you don’t look autistic at all!”
[Wayback/Archive.is] Home – But you don’t look autistic at all – An #ActuallyAutistic book on autism by Bianca Toeps
Dutch
Bestseller. Bianca beschrijft op eigentijdse en humoristische wijze hoe het is om autistisch (en vrouw en ondernemer) te zijn.
[Wayback/Archive.is] Maar je ziet er helemaal niet autistisch uit – Boek door Bianca Toeps
Me and autism
Me being diagnosed being in the autistic spectrum, which helped big time surviving rectum cancer that was diagnosed a month later [Wayback/Archive.is] Thread by @jpluimers on Thread Reader App – Thread Reader App:
Triggered by @jilles_com (link: next tweet), I was diagnosed with autism 18 months ago coincidentally in the same month my mentally retarded brother got the same diagnosis, followed by training.I got a vocabulary explaining so many good and bad things in our lives!
First the promised link, as it is a start of a wonderful thread:
@jilles_comAdmit Friday: I have been diagnosed with ADHD, Autism and Binge Eating Disorder over 10 years ago after thorough examination. Therapy helped me discover my own manual. Although coping with being different has its challenges, I consider it to be the superpower I embrace.The diagnosis tremendously helped me get through all the treatments and care after my rectum cancer diagnosis 17 months ago.
Yes, these diagnoses were only 1 month apart!
Being able to explain I’m autistic (as one does not look autistic at all: hello @biancatoeps), the consequences it has in approaching me, how to sense when I get overloaded and what happens when I do were key in getting proper care.
Care that was confused why I took Covid-19 isolation so well, which was because I’m really good at following routines/rituals when I understand they benefit me or the community at large:
@jpluimersReplying to @jpluimers @aboutanurse and @mirakelams
… dat ik niet boos of teleurgesteld was, maar juist blij dat er zo snel gehandeld was: zoiets, zelfs bij een prikafdeling, is een kwestie van pech, want er hoeft maar 1 superspreader op een ongelukkig moment geweest te zijn. Isolatie was op zich voor mij een soort… 3/The diagnosis also unconsciously enabled me to drop almost everything else in life like a brick. Now I know why: I had to in order to be able to survive at all, as without survival, I would be there any more for the people close to me.
This “drop everything like a brick” baffled my Eega, as this was totally different than my normal modus operandi: I hardly ever drop things.
I now know that this is also one of my biggest weaknesses: being so conditioned not dropping things sometimes bites back big.
Having a vocabulary around autism also helped me to better understand why things happened the way they did in both my life and various lives of people close to me, including my brother and my Eega.
In addition, I can now better communicate with them and others.
That still often fails (you might think otherwise reading my streams of tweets, but trust me: communication for me is very hard), but not as badly as it used to.
It failed big time on Tuesday and I only could explain on Wednesday (it is one of the communication aspects I hate: only being able to see things in perspective very very late, often not being able to set things straight by then).
Tuesday had 2 important administrative deadlines. Administrative things are among the things I dislike very much, so they give me a basic stress level.
I did have enough spoons (see en.wikipedia.org/wiki/Spoon_the…) to get that done. But then things started failing.
Two hardware things and a software thing broke down unexpectedly and needed research in order to estimate when and what kind of actions to take.
Those took many spoons, but also put me into “the zone” – see en.wikipedia.org/wiki/Flow_(psy… .
Being “in the zone” uses less spoons than normal, but hasn’t occurred a lot lately as I’m still recovering from all the treatments, so I did not even consciously realise I was in it at all.
Suddenly, I got kicked out of the zone, causing me to be very angry.
With the vocabulary and the workshops, I know how to handle that situation better, but not in my current state of recovery.
It has to do with awareness and being able to going slightly outside “the zone” to do minor communication, then go back into it.
This was a tiny insight into where I am in the autistic spectrum.
It is a spectrum so every autistic person is having aspects in that spectrum, but usually in different places or with different gradations.
Those have cons, but also big pros, especially for work.
The trick is to find where one can excel using the pros and coping with the cons, for instance by steering towards situations where cons hardly happen and pros happen very often.
I could tell many more stories and give lots more insights.
Others however are way better at phrasing this, so please read their work. A good start is this great book by @biancatoeps:
It is just EUR 21, so get it while stock lasts (:
/end
I wrote this inspired by [Wayback] Thread by @jilles_com on Thread Reader App – Thread Reader App starting with:
Admit Friday: I have been diagnosed with ADHD, Autism and Binge Eating Disorder over 10 years ago after thorough examination. Therapy helped me discover my own manual. Although coping with being different has its challenges, I consider it to be the superpower I embrace.……
–jeroen
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Snowflake – help vulnerable people (like censored or in war zones) access the internet
Posted by jpluimers on 2022/02/28
Via [Archive] Daniël Verlaan on Twitter: “Het is lief dat mensen iets willen doen, maar dit is even “effectief” als heel vaak op je F5-knop drukken. Als je zonder technische kennis mee wil helpen, draai een Tor Snowflake zodat Oekraïners en Russen toegang blijven houden tot een vrij internet: …” / Twitter:
[Wayback/Archive] Snowflake
Snowflake is a system to defeat internet censorship. People who are censored can use Snowflake to access the internet. Their connection goes through Snowflake proxies, which are run by volunteers. For more detailed information about how Snowflake works see our [Wayback/Wayback] documentation wiki.
Run a Proxy
If your internet access is not censored, you should consider installing the Snowflake extension to help users in censored networks. There is no need to worry about which websites people are accessing through your proxy. Their visible browsing IP address will match their Tor exit node, not yours.
If you would like to run a command-line version of the Snowflake proxy on your desktop or server, see our [Wayback/Archive] community documentation for running a standalone Snowflake proxy.
Use Snowflake
If your internet access is censored, you should download [Wayback/Archive] Tor Browser.
Install in Firefox
Install in Chrome
–jeroen
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Meldactie: Ervaar jij knelpunten met je Zorgprofiel voor langdurige zorg? – Iederin
Posted by jpluimers on 2021/12/20
Invullen uiterlijk zondag 23 januari 2023:
[Wayback/Archive] Meldactie: Ervaar jij knelpunten met je Zorgprofiel voor langdurige zorg? – Iederin:
Loop jij aan tegen knelpunten met je Zorgprofiel voor langdurige zorg?
Ontvang jij zorg uit de Wlz en ervaar je daarbij knelpunten met je Zorgprofiel? Bijvoorbeeld omdat je in de praktijk niet de zorg krijgt, die in je profiel staat omschreven? Of omdat de inhoud van het profiel niet goed aansluit op de zorg die jij nodig hebt? Laat het ons dan weten.Via deze link kun je een korte vragenlijst invullen en je ervaringen met ons delen. Dit kan tot en met zondag 23 januari 2023.
Meldpunt: [Wayback/Archive] Meldactie: Knelpunten Zorgprofielen/ZZP Wet langdurige zorg Survey
Via:
- [Archive] Elisabeth on Twitter: “@Iederin @jpluimers” / Twitter
- [Archive] Ieder(in) on Twitter: “Heb jij een beperking of chronische ziekte en ontvang je daarvoor zorg uit de Wlz? Loop je daarbij aan tegen problemen met je Zorgprofiel? Laat het ons dan weten! #Wlz #Beperking #Zorg …” / Twitter
–jeroen
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The Wiert Corner - irregular stream of stuff 